spring fever....

Hey all.. Will is doing great! His A1c is at a record low of 7.3 : We got a fantastic diabetes report from the ped. Endo..Makes us feel like all the lost sleep is worth it for his long term health. His BG has been stable for the most part with mainly under 300's for highs.. and a lot less super lows. He is still working on his dad on getting a dog, but we both know that we'd be the ones picking up the dog doo so he will have to keep working.... He went for his first motorcycle ride with daddy this past month. LOVED it! He is tired of being 4, he keeps telling us he wants to be 3 again, or 5. We think its because of daycare. He moved up the 4's room this past january and he's not liking it as much as the 3's room. :( The Dr's office actually got to take his blood pressure this time around. to bad it didn't read right the first time because there was no way they doing it again... getting there. William is starting to write his own name and is showing interest in learning to read. "what do these letters say?" We are ridding the bike around the block a lot, and he's already burned through his back tire... time for a bigger bike anyways....

back on the rollar coaster ride....

We are well into the year and no, I haven't been very good at posting to his blog. We as a family have been extremely busy.... With very little sleep to go around and a very long to do list, the blog is last on the list.....

We are having a hard time regulating his BG. We are having high highs, which makes him go super low.... our new all time low is 29.... Very bad news...

He seems extremely sensitive to carbs and insulin and the ratio changes every time we change insulin vials... Its hard to keep up.

We've giving the CGM system a break for a while because it can be so inaccurate, but then again we are having super lows. so I don't know what is worse....

Living with Diabetes really sucks, but we are thankful for the modern medicine.

Daddy hasn't been home much because of First Robotics, and momma is trying to keep up with the house and homework.... We are all looking forward to summer...

Good A1c !

Woot Woot! 7.7 A1c !
we got another Excellent Patient Care for Will's quarterly diabetes check up :).
The doctor and nurse educator was impressed at our ability to stay on top of things and said that his life expectations without Diabetes complications are looking good especially if we continue his great care....

After all the Sleepless nights, its nice to get a pat on the back once in awhile (even if it is only every three months):)

Jan '12

So, it's now January of 2012. Will turned 4 in December and he is growing like crazy. We had fun sledding the other day with the years first heavy snow fall. He had so much fun, I had to keep feeding him food to keep his sugar above 90. He didn't care, he only cared about the girls he was winning the races with down the hill.

We've been really struggling with daycare and the quality of his diabetes care. It's gonna be a lifelong battle atleast until he is old enough for self care. I can't wait until he is old enough to carry a cell phone and I can call and check on him whenver I feel worried. Ok, so he probably wouldn't like that so much.

Will has been having several "lows" and we are not sure why. He is growing, but sometimes this rollar coaster can be a little much....

We sure do love our little man though.....

One Year Anniversary :(

Today is our one year anniversary. The day before Thanksgiving dinner we spent ALL day at the endocrines office in GR for intense training on how to care for, and keep our child alive. We left in a dizzy haze wondering what the heck happened. The crash course contained counting carbs, checking Ketones, types of insulin, giving shots (when where and how), and a checklist of when to call the doctor or go to the hospital.

We started that day with a fasting glucose of 257 and an A1C at 11.2.
Today we are doing better with the BG control but we are still VERY tired! We have graduated from shots to using infusion sets and the pump. Love the Pump! The CGM system is flawed but does help up maintain the BG. This past week the wonderful (stupid) CGM set the pump a chimmin' all night long. :) Mom can not hear the wonderful (stupid) CGM pump at night while sleeping so dad who very much can hear the thing go off every 15 minutes doesn't get much sleep. Even when the thing doesn't go off we "think" we hear it and therefore no sleep... Our little prince however snores through everything :)

Yes, it is still a wonderful rollarcoaster ride with diabetes. As we would do anything for our kids, I'm getting to old for the all nighters and no sleep on a regular basis. My body wouldn't know what to do with actual sleep.

We are thankful for modern medicine and praying for a cure for type 1 diabetes on this one year anniversary and every day.

Been awhile...

So its been a month since our last post. We have been dealing with a lot. He just finished his second round of antibiotics for a sinus infection that doesn't want to go away. And of-course, I have one too. We've had many nights of checking at 2am. He seems to have the night phenomenom which he climbs rapidly when he first falls asleep.

When he first was diagnosed he did everything in opposites. They said he would drop after exercise. He actually climbed rapidly. Now on the other hand he did a switcheroo. He now rapidly drops. It is amazing when you think you get things figured out they switch again.

We are approaching his one year anniversary. Man, where did the year go? This anniversary is kind of sad that we have to celebrate it, but glad for modern medicines in which makes celebrating possible.

Long week!

Its been a long week! He's been sick with a cold. We decided to restart the sensor and its going better. Little more accurate than the last one which tells me that maybe the last sensor wasn't in properly since it came out so easily.
We had two bad sites in a row this week which put him into ketoacidosis. Almost had to make a hospital trip. We went back to injections and checking his BG every hour all night long (no sleep for mama). We went through four site changes in two days because he also pulled one off. Silly boy, doesn't he know that hurts?