Today is our one year anniversary. The day before Thanksgiving dinner we spent ALL day at the endocrines office in GR for intense training on how to care for, and keep our child alive. We left in a dizzy haze wondering what the heck happened. The crash course contained counting carbs, checking Ketones, types of insulin, giving shots (when where and how), and a checklist of when to call the doctor or go to the hospital.
We started that day with a fasting glucose of 257 and an A1C at 11.2.
Today we are doing better with the BG control but we are still VERY tired! We have graduated from shots to using infusion sets and the pump. Love the Pump! The CGM system is flawed but does help up maintain the BG. This past week the wonderful (stupid) CGM set the pump a chimmin' all night long. :) Mom can not hear the wonderful (stupid) CGM pump at night while sleeping so dad who very much can hear the thing go off every 15 minutes doesn't get much sleep. Even when the thing doesn't go off we "think" we hear it and therefore no sleep... Our little prince however snores through everything :)
Yes, it is still a wonderful rollarcoaster ride with diabetes. As we would do anything for our kids, I'm getting to old for the all nighters and no sleep on a regular basis. My body wouldn't know what to do with actual sleep.
We are thankful for modern medicine and praying for a cure for type 1 diabetes on this one year anniversary and every day.
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